Two years ago, December 26, 2014, I had a seizure (undiagnosed).
This year, December 25, 2016, I had a seizure.
I have brain cancer, and like many, mine presents with frequent seizures. It took 18 months of “it’s probably stress related,” and “it could be vertigo” to get an MRI ordered (May, 2016) to investigate my dizziness and left-sided weakness and reveal a primary brain tumor. Since, I underwent (awake) brain surgery, inpatient recovery, inpatient rehab, chemo, radiation, and now monthly chemo cycles. I continue to struggle with seizures as part of my cancer. I vowed not to be the cancer mascot; not to fill your feeds and timelines with Adam and his cancer story. “I’m more than my disease,” I quipped.
New strategy: fuck that.
I am the cancer mascot on behalf of an estimated 12,000 newly diagnosed glioblastoma patients this year; 10,000 of those folks won’t live much past a year. I’m 7 months out from formal diagnosis. In these 7 months after surgery, I taught my left leg to walk again, my left arm to type again, I’ve learned cell anatomy, cellular metabolism, intro to genomics, and read extensively on competing theories of carcinogenesis. I am reading medical textbooks on biochem and molecular biology. I am graduate trained in the philosophy of science. I am strong; smart; driven. I am learning my disease.
If you think I cannot learn the biological features of my cancer..
If you think I cannot advocate to medical professionals on behalf of brain cancer patients…
If you think I cannot raise money and awareness for brain cancer research…
If you think I cannot contribute meaningful academic work with respect to the explanatory framework and ontology of cancer to benefit the medical oncology research community…
If you think I cannot expose at least one vulnerability of my aggressive cancer, with positive impact to clinical outcomes…
Prepare to have your beliefs revised.
2017 is my year.
6 responses to “2016 Statement on Cancer”
I am reading your strength.
I think you can do all of the above, and I’m looking forward to following along as you do!
No doubt in our minds these goals will be met. Can’t wait to watch this unfold.
Adam I have never met you. I think you are amazing man. My prayers are with you. I am Sandi Regan’s cousin in Buffalo. I am rooting for you and your famiy. Bless you.
Wow, wow, and wow!!!! I love this writing! It is amazing because you are amazing, Adam!!!!
[…] these past several days my diagnosis has not been so easy to forget. I mentioned on Christmas night that it had been two years since my first seizure, and that I had experienced one that day, […]