Why Disability Doesn’t Work If You Work, with Advanced Illness

The word “financial toxicity” is often used in the context of cancer care. Why is that? Here is my experience with financial instability.   I became eligible for disability shortly after diagnosis with glioblastoma. This diagnosis qualifies for the Social Security Administration’s list of compassionate allowance conditions, which “are a way to quickly identify diseases and other …

Senator McCain: Living Well Until The End

A version of this post also appeared on the End Well blog. The End Well Symposium, taking place December 6, 2018, in San Fransisco, CA, is a “day of learning and connection as we engage with one another, across disciplines, to transform the end of life into a human-centered experience.” *** On Monday, August 20, 2018, I held …