What We Gain Through Shared Language

And he’s on the table and gone to code/ And I do not think that anyone knows/ What they’re doing here” -“Jumper,” Third Eye Blind   My mom delivered me in a hospital with no staff anesthesiologist, and her care was provided by a general practitioner, not an OB. The story goes that when the doctor asked …

The Benefit of Death Talk

I addressed a large audience of 250 friends, family, and community members in a public “talk,” several months following my diagnosis of glioblastoma—a grade IV malignant brain tumor. I rehearsed my thoughts, writing posts for my personal blog, Glioblastology, beginning in October 2016, four months following my hospital discharge, after brain surgery and intensive rehabilitation …

Unfinished but timely: on the patient perspective

Note: I wrote this post yesterday after reading the article mentioned in what follows. I did not publish. I wanted to return, edit, clean up, ensure my case was compelling. Instead. I missed a window of opportunity to strike while the iron was hot, as it were. Tonight Medium ran this response from @cancergeek to …

Paying It Forward at Thanksgiving

Jack Hope and I share many interests, not least of which is a mutual love of well-crafted cocktails, which sets up the story, how Jack and I became friends. I tended the bar at Libertine, learning from and working beside some of our industry’s best. Jack was a loyal, kind-hearted, thoughtful patron. If you know …

Measure What Matters

At the funeral, in the foyer of the church, amidst the sea of grieving strangers, herding their way into the receiving line, he said to me, “I wish my dad would hug me. I’m not sure he’s even said ‘I love you.’” Don’t be misled; the funeral isn’t for his old man. Time remains to …