Camp Kesem BSU Make the Magic 2019

Our family has been uplifted in so many ways by our experience with our Camp Kesem local chapter at Ball State University. Camp Kesem is a week-long summer camp for children whose parents or guardians have been affected by cancer, CK supports kids, "through and beyond a parent's cancer." The camp is provided at no cost …

Unraveled

"I think this is the winter everything unraveled."   I sent this text to my spouse, early Sunday morning, February 2019, calculating battery time remaining on our family iPad, as the kids huddled on our bed, while the neighborhood lie dormant with a power outage. Thick February skies quieted our home, and a drizzle of …

Why Disability Doesn’t Work If You Work, with Advanced Illness

The word "financial toxicity" is often used in the context of cancer care. Why is that? Here is my experience with financial instability.   I became eligible for disability shortly after diagnosis with glioblastoma. This diagnosis qualifies for the Social Security Administration's list of compassionate allowance conditions, which "are a way to quickly identify diseases and other …