A parent, living with cancer, and the Hobbesian natural state.
Why Disability Doesn’t Work If You Work, with Advanced Illness
The word "financial toxicity" is often used in the context of cancer care. Why is that? Here is my experience with financial instability. I became eligible for disability shortly after diagnosis with glioblastoma. This diagnosis qualifies for the Social Security Administration's list of compassionate allowance conditions, which "are a way to quickly identify diseases and other …
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On Survivorship, from the Survivors
I set out to write this post in hopes it would meet others where they are, in their own struggles as a spouse, child, sibling, parent or guardian, also slogging through survivorship.
Senator McCain: Living Well Until The End
A version of this post also appeared on the End Well blog. The End Well Symposium, taking place December 6, 2018, in San Fransisco, CA, is a "day of learning and connection as we engage with one another, across disciplines, to transform the end of life into a human-centered experience." *** On Monday, August 20, 2018, I held …
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Surviving to bear witness
Sunday, June 10, 2018 marks two years after Whitney and I were transported in a wheelchair accessible van from an inpatient acute rehab facility to the IU Health neuroscience center. We sat in my neuro oncologist's office and received news of my glioblastoma diagnosis.
