Our family has been uplifted in so many ways by our experience with our Camp Kesem local chapter at Ball State University. Camp Kesem is a week-long summer camp for children whose parents or guardians have been affected by cancer, CK supports kids, "through and beyond a parent's cancer." The camp is provided at no cost …
2019 Tumor Takedown Tailgate
Join us for the 2019 #TumorTakedownTailgate to benefit National Brain Tumor Society
Unraveled
"I think this is the winter everything unraveled." I sent this text to my spouse, early Sunday morning, February 2019, calculating battery time remaining on our family iPad, as the kids huddled on our bed, while the neighborhood lie dormant with a power outage. Thick February skies quieted our home, and a drizzle of …
Living with Cancer: Insidious and Destabilizing
A parent, living with cancer, and the Hobbesian natural state.
Why Disability Doesn’t Work If You Work, with Advanced Illness
The word "financial toxicity" is often used in the context of cancer care. Why is that? Here is my experience with financial instability. I became eligible for disability shortly after diagnosis with glioblastoma. This diagnosis qualifies for the Social Security Administration's list of compassionate allowance conditions, which "are a way to quickly identify diseases and other …
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