Maybe you’re not a liability at all; instead, your marginalized status give you perspective that those in the center would never achieve without you.
#BTSM #AandWTumorTakedown
Tag Archives: Disability
I’m not Dead, and That’s Weird
Patients are told not to throw in the towel, don’t lose hope, hold out for the miracle, but when we frame cancer survivorship by a relentless battle, we award the wrong priorities. Instead we should celebrate reconciling the plans that we had for our lives with the reality that we may need to adjust our goals. Maybe the miracle is not the life saving treatment breakthrough, but instead, it is the breakthrough of fresh perspective that asks honestly, “How would I like the completion of my life to look?” And not, “What I can possibly do to extend it?”
Health as Resistance
What if my greatest act of resistance to terrible disease is prioritizing health?
The sick role
Last week Whitney and I launched a GoFundMe campaign, and we published our needs to the community with this blog post. We reached our goal within hours of the post, and in the following days, we doubled our goal. We are incredibly thankful for the amazing community that continues to support us, now in our …
Unraveled
“I think this is the winter everything unraveled.” I sent this text to my spouse, early Sunday morning, February 2019, calculating battery time remaining on our family iPad, as the kids huddled on our bed, while the neighborhood lie dormant with a power outage. Thick February skies quieted our home, and a drizzle of …
Glioblastology 